The Halls of Mayo Clinic

From the moment we walked in, I felt an energy that was unlike anything I had felt before. At the time, I couldn’t find the words for it. The security guards at the main entrance had kindly pointed us in the right direction. There were several people in the outdoor courtyard area, enjoying the beautiful morning. Most were just enjoying the sunlight on their face or deep in conversation with a loved one. Everyone outside appeared to be living in the moment, enjoying it. I thought about how I take for granted the luxury of going outside whenever you want to feel the sun on your face.

We quietly rode up the elevators to the 16th floor, pediatrics. I wanted to ensure that we would know exactly where to go later that afternoon when my daughter would have her imaging done. When we turned the corner from the elevator, I caught my breath as I saw the line waiting to check-in. The line was efficient and moved quickly, but patients kept lining up. The tears started to run down my face after only standing there a few minutes. I wasn’t the only mom who had lost sleep last night, I wasn’t the only one praying for the pre-authorization to go through or praying that today we would hear good news.

The waiting room was beautiful. The ceiling was glowing with different shade of blues and greens, one wall covered in artwork on glass that was lit up. Comfortable curvy couches filled the waiting room, full of families waiting. Bluey played on a TV in the corner, a dozen kids mesmerized with the episode. I remember thinking how wonderful it was that Bluey could be a distraction from reality. When it was finally our turn, I confirmed with the check-in desk that this would be where we would check in a few hours later. He greeted us with such compassion, I wasn’t sure if it was due to my tears or if this is just how he always was, because this was the nature of this job.

We rode the elevator back down in silence, both my girls and myself suddenly so much more aware of what this place is. We got off at the lobby, but then walked to the lower level. I had been told there are tunnels that attach the buildings, but again, it’s something you can’t wrap your mind around until you see it. As we walked, I wondered about the people we walked past. Many were being pushed in a wheelchair by a loved one. Sometimes the patient looked exhausted and sometimes the caregiver did. Some were walking and had to stop often to catch their breath, some had a loved one there who patiently waited for them. Others were seated in the cafeteria, waiting on a loved one to help bring them their tray.

I looked at facial expressions as we walked. So many had a look of weariness, but somehow a look of hope. If you’re at Mayo Clinic, you’re here because there is no one else in your region who can help you with what you need, and it’s as if it is written on everyone’s faces. It’s as if every person there knows how lucky they are to be there. I thought about how the stars aligned for us to get this appointment, as it almost didn’t happen. I thought about those who are still waiting to get the call for an appointment.

We navigated our way from the clinic to our hotel and then went to the mall, which I had promised my girls. I wondered how many other parents were there, shopping as a distraction from what you’re really there for. We didn’t stay as long as they wanted to, I was too paranoid about missing an appointment we had waited so long to get. I remember noticing how kind the cashiers were everywhere we went. Everything felt different in that town.

We made our way back to the clinic. I was sure that this late in the day the waiting room would be cleared out. We made our way back up to the 16th floor again. When we rounded the corner the line was even longer. There were newborn babies and there were teenagers and every age in between. Bluey was still playing in the corner with an audience just as captivated as the audience this morning. The parents in the waiting room had worry and exhaustion on their faces. Some were on their cellphones updating grandparents back home. Some were filling out paperwork. Some were just sitting quietly with their child, taking it all in. There was a little two-year old boy with the most beautiful blonde curls and a newborn baby girl making newborn grunts as she squirmed when her mom reached to pull her out of her car seat. I remember saying a prayer for them, that they would get to live long, healthy lives and do all the things that children hope and deserve to do.

After my daughter’s imaging appointment, we rode the elevator in silence with another family. The mood was not joyous and energetic. It’s a different feeling to ride an elevator with children who aren’t excited about the magic of it. I prayed for that little boy of that family and will always wonder about him.

A hard rain had set in and it was pounding against the windows, but you couldn’t hear it because a girl was playing the most beautiful song on the piano.

We made our way back through the clinic to our hotel and I thought about the PBS special I had watched last summer about the Mayo Brothers. We walked past the Hall of Benefactors. I wondered what inspired them to donate and if some had first been a patient or if this place had treated someone they loved. There were so many names listed in that hall and I was grateful for each and every one of them.

We dropped some things off at our hotel room and then explored the streets that surrounded Mayo. We ate at the Italian place on the corner and it was as wonderful as every review said it would be. There is something I will never forget about walking through that crowded restaurant – not one person was on their phone. Not. One. It appeared most of the patrons were Mayo patients. Some tables consisted of families and some consisted of people dining alone. Everyone appeared to be enjoying the company they sat with. Everyone was taking in the moment, grateful for it. There was no need to be scrolling social media or thinking about a different time or place, the moment we were in was everything we all wanted.

The next morning we woke up bright and early for our last appointment. Again, we were met with a line for the pediatric waiting room. Shortly after we sat down on the curvy green couch, a boy around my daughter’s age was wheeled up along side me by his dad. His mom joined them a few minutes later. He was wearing a faded grey cap, looking frail and exhausted. I remember distinctively thinking that whatever they were there for, if given the option, I’m sure they would trade patient charts in a second with us. I remember promising myself that whatever discussion we were about to have with our physician, I would be grateful that were there for just that. The boy’s mom started talking to him about his dog and their dog sitter. At first he tried to make a few jokes about his dog, but I noticed he was just too exhausted. I felt as if he was trying to put his parents’ worried minds to ease and I admired him for it. I thought about my own son who would had a baseball game the night before, 600 miles away. I thought about how a few days earlier, I had complained that soccer was too cold at 7:30 in the morning. I was suddenly so disgusted that I had ever taken for granted a moment of watching my healthy children play the sports they love. I remember in that moment promising I’ll sit in the snow or the rain or whatever it is, to watch my kids do their things. I prayed that in the near future, that boy will get to be doing whatever he loves, too. The moms in that waiting room wear a feeling I don’t know how to describe.  You can feel it in the air.

I instantly loved the physician we had heard so much about. She was every bit as wonderful as I had heard. She gave us a great detail of information, always addressing my daughter first and foremost and checking throughout our consultation with any questions she may have. She was thorough and kind and encouraging. We left feeling nothing but gratitude to have this surgical option. I wondered if she knew she was the answer to this mother’s prayer and how grateful I was for her and whatever path led her to Mayo.

As we walked back through that waiting room, different families filled the couches. It wasn’t lost on me that I was likely one of the luckiest moms leaving there that day.  As we turned the corner for the elevator, a family had just gotten on one. The mom put her hand, in the door to hold it for us. I could tell by the expressions on their faces that whatever news was discussed at their appointment didn’t seem to be the one of hope we had just had, yet the mom made sure the door wouldn’t close on us. We rode down in silence, both of us likely processing the morning we had just had.

As we made our way back to the lobby and to the tunnels our adjacent hotel, an adorable, big, white therapy dog was rolled over on his side, thrilled for the rubs he was getting by his admirers. Patients faces lit up seeing this sweet, fluffy dog. Whatever was on their minds moments earlier was temporarily set aside.

I was so surprised how the lobby could enclose so many people, yet not feel crowded at all. It was again rainy and gray outside, but the big, beautiful windows still made everything so bright. We grabbed a drink for the road, even the barista was kind. I realized that through every Mayo encounter we had, from food service to the physician, every one made us feel welcomed. It was as if everyone who worked there was wanting to say, “I know today is hard. How can I make it easier for you?”

On our almost 600-mile drive home, I thought a lot about the energy at Mayo Clinic and the feeling that surrounds you when you enter. The faces of caregivers and patients told so many stories, expressions that were weary but hopeful, but there was something else. It was love. It was a building full of people wanting more time for their loved one or wanting to improve their quality of life. It was a building full of physicians who are so passionate about modern medicine and the science that can give the world the best version of it. It was a waiting room full all day, every day, of moms who want to see their children run on the soccer field or play outside with their dog as they feel the sunshine on their face. It was a community of people who want to be in the moment with those that they love, those who are acutely aware that our days are not infinite.

Miss you, friend

Today I watched your daughter dance. She was beautiful up there and I wish you could have seen it. She did her own make up today, not because she wanted to, but she’s trying so hard to learn how to do the things you were always here for. After their performance, we would’ve texted about how well they danced. You would’ve made a joke about something that would’ve genuinely made me laugh. Instead, today I drove to your cemetery. I left you flowers. The grass hasn’t yet grown in, a reminder that you haven’t been gone that long. I stood in the rain and I watched the raindrops fall onto the rose petals. My face couldn’t differentiate my tears from the rain. I thought that if I brought you flowers that had been at the performance then it was like I was bringing you a piece of today. I know you wouldn’t have missed it for the world. You never missed any of it. You always showed up for your kids.

Dance would be a particularly difficult sport when you lose a mom. Moms do the make up and the hair and pay attention to the details of a costume. Somehow she gets through it. I love that she gets to dance at the same studio where you danced, too. When she smiles on stage I see your smile, too.

You were a friend I met through our daughters. For years on Thursday nights, you parked three spots to my left. I would pull in and look over to you and you’d smile that smile that lights up a room. And now you’re not there and almost six months later my eyes still blur as I watch her walk out of the studio but not get into your car. She smiles at me, that big smile like her mom, and I see you there. I want to rewind the years and run over to your car and get to know you sooner, better. I’ve realized now that for whatever reason, this is the part of the journey where our paths were supposed to cross. This is the part where I’m here and you’re not, but I will be here for your girl.

What a privilege it is to see where you came from and to see where you were going. There are no new memories to make with you, and I finally got to be a part of your life at the end. I feel like I’m still getting to know you in your postscript. Your people have shared so many stories with me and how lucky I feel to get to know you better, even after you’ve left.

You should see the way your crew gets it done, immensely missing you, but getting it done. Those grandmas are always there to do what is needed and your husband shows up at the practices and waits for her in a sea of moms, just as I’m sure you knew he would.

I once told you I lost my dad when I was her age and I know you truly heard me when I said I’d be there for her. I know how it feels to miss a parent so much that you feel your heart literally break. But I also know how it feels to feel that person right by my side, at every step of the dreams he dreamed for me. I know that during all of those moments your family loves, the ones they wish they could tell you about, that it was probably you that made that moment happen. You are so missed and where there is deep grief, there was great love. Sometimes it’s hard to remember that we end up at the same place, you just got there first.

I know what it feels like to watch the support of a standing room only funeral fade over time. I also know how it feels when others don’t forget. I know how it feels when 25 years later, someone still mentions my dad. Sometimes people are afraid to mention who we lost, ‘in case we aren’t thinking about it.’ As if we ever aren’t thinking about it.

I’ve learned that some of the greatest friends I’ve met are the friends my kids introduced me to. You were one of them. This weekend our team leaves for our first competition and you won’t be there. I miss you and I wanted you to know.

Your kids are incredible. When we see them, we see so much of you.

I will be here to remind them that you’re still there in all they do.

The last text I have from you is you asked if you needed to pack a lunch for her practice. I read your text, realizing it hadn’t even crossed my mind to pack a lunch for that practice. I was so glad you asked – I didn’t know either. That was on a Thursday and on a cloudy Sunday you were gone. The last text I have from you was you always putting your kids first.

The world is better because you were in it. Miss you, friend.